Reblog: Then He Kissed the Back of my Hand

Apparently I found the limit on the number of times WordPress will let you reblog one of your own blog posts… Today is the 3rd anniversary of my baby brother’s passing, and so I took some time this morning to re-create the story to share, spend some time with my own thoughts, and just reaffirmed how fast life can change and how important it is to stop and spend time in the moment.

Love you all, and now back to the story.

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My parents always knew that they wanted to have 2 kids and to adopt.  So, after me and my sister, they began looking to adopt.  They wanted to adopt a special needs kid, provide a home to a child that might be overlooked.  They were aware of their own limitations and knew that they wanted a child with a physical handicap.  We took sign language classes together for a while when we thought we were getting a deaf sibling.  That fell through and in the end, we found out about Lee.  Lee had a little red triangle that appeared on his forehead above his nose when he cried and got upset.  The Koreans considered that a handicap.  It was meant to be!

Image<a Lee at Universal Studios, he’s so strong, he is lifting up the A-Team Van with one hand!

His Korean name is Man Ho Ha and we picked him up from Dallas airport when he was 6 months old.  He was ours from the time he was a month old, but we couldn’t get him until he was 6 months old.  It was amazing.  A Korean woman had traveled with him and several other babies and dropped them off at other stops, and Lee and one other child, a little girl, were her last stop.  We passed him around our arms while at the airport and just couldn’t keep our eyes or hands off of him.  It was a memory that will always stay with me.

He was named Jayman Lee.  Jayman is spelled slightly different from normal so that we could incorporate his Korean name in there – and Lee is a family name.  We just called him Lee.

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Through the years, as a good older sister does, I tormented him! I curled his hair and my other sister dressed him up.  Good Times!  Since there is 10 years difference between he and I, we were pretty close.  When he got older, I always took him school supply shopping.  We had season passes to Six Flags for many years.  Apparently, when he and I were younger, I thought I was also his mom.  He would bring home papers from school that were subpar and needed a parents signature, in order to keep him out of trouble I would sign his papers.  Then mom and dad would never know that he didn’t do well.  Yeah, uh, they found out anyway.

It was 10 months ago that he was diagnosed with viral cardiomyopathy.  You have followed my journey with him here on my blog.  After the initial diagnosis, he did good.  We had a few set backs, but overall, he was doing really well managing the condition.  We did have a few scares along the way, but he always pulled through.  In fact, our aunt commented at a family function “you don’t look sick.”  Yeah, she’s that aunt.

ImageLee’s Senior Picture

A little over a month ago he started not feeling very well.  His meds were adjusted, but he knows is body, and he knew when it was time to go to the ER.

He never left the hospital again.

This kid was amazing.  He took everything that was thrown at him.  We didn’t think he would survive the gallbladder surgery, but he did.  Then he was transferred to UT Southwestern, which is one of the best hospitals for cardiovascular issues.  He seemed to be getting better, but then stopped.  I can’t tell you how many times we were told “he may not make it through the night” but he did.  When he went in for his LVAD surgery, again, we knew he might not survive, but against the odds, he did.  I’m so very proud of my brother for all that he went through and how well he handled it.

There was a Tuesday that I went to visit him in Dallas.  He took my hand and held it.  He told me how much he loved me and how glad he was that I was his sister.  He said that he knows how much crap I put up from him over the years and he was so glad that I was always there to support him.  He also mentioned how thankful he was that I could spend so much time with him in the hospital.  He acknowledged that it couldn’t have been easy for me, but that he wanted me to know how much he appreciated it, and me, and how very much he loved me.

Then he kissed the back of my hand and sat there holding my hand.

That’s the last conversation I had with my brother.

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Lee with our nephew

That night he had to be put on the ventilator.  A week later he coded and slipped into a coma.  This Monday, he had a CT scan and we were told that there was swelling in the brain due to damage and that the doctors would not be able to fix that.

It was time.

This Tuesday we gathered by his bedside.  Mom, dad, my sister, my grandmother and I.  We held his hand, kissed his head and said our goodbyes.  When we were ready, we called in the doctors and nurses and they turned off his machines and left us in peace.  We stood by and talked to him, held his hand and we cried as he passed away.

Lee transitioned peacefully to Heaven surrounded by love.  We let him know how much of a blessing he was to us, and that we were letting him go.  He didn’t take long to pass, and we all knew when it happened, you could see the peaceful expression, it was so nice that after such a trying journey, he had found peace.

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Last picture of me and Lee, at the hospital

Today we have been busy making the arrangements.  Lee will be cremated and we will have a memorial service this Saturday morning.  I’ve been in contact with family and friends and have been absolutely amazed at the outpouring of love and support I have received.

Lee was well loved, and for a pain in the butt brother, he was pretty darn awesome.

Thank you all for being part of my journey with Lee.

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What is Happening in the Land of Did That Just Happen

I'm not saying I can perform miracles or anything, but check out Did That Just Happen Blog!

There is no reason for that meme, I just found it the other day and LOVE it!

Okay guys, here is a quick recap of what is happening in the land of Did That Just Happen.

Senior Pictures with Mom at Did That Just Happen Blog

We took Senior Pictures.  I am blessed that one of my dear friends is a photographer and she has known Mr. T since he was little, so I knew I could trust her to capture his essence, and she did a great job.  Plus, she let me get in a few of them, and be still my heart.  I’m about to go pick this picture up, I had it blown up and put on a canvas!

You've Been Flocked from Did That Just Happen Blog

After work the other day I ran into town and Flocked a teacher.  🙂  It’s a fundraiser we are doing for Senior Celebration, and seriously, when I waved at one of their neighbors as I was surreptitiously putting up almost a dozen flamingos, I was sure I was busted! But the flock of flamingos is up, and the teacher has been a good sport, and even tweeted it!  Our goal is to raise awareness and now raise some funds!

Senior Mum Preview at Did That Just Happen Blog

It’s #SeniorYear so that means MUM SEASON!! I can’t show you a picture of the mum Mr. T designed for his girlfriend, as he doesn’t give it to her until tomorrow, but the above sneak peak should tide you over!  And, for those not familiar with Friday Night Lights, I wrote a post last year to help you understand how big of a deal Homecoming is for us! (Oh, just FYI, apparently the kids at T’s school were discussing mums and googled it and my post came up, and well, wouldn’t you know, one of the girls IN THE POST was the one googling and saw herself featured.  Hey, I asked for the picture before I took it!! But it still cracked me up!)

Speaking of Friday Night Lights:

Cheer is Life for us at Did That Just Happen Blog It's all about that Base at Did That Just Happen Blog Cheer is Life at Did That Just Happen Blog

I’ll deny this if you ever repeat it, but I am going to miss being a Cheer Mom.  I did great at it! I stepped outside my comfort zone.  I volunteered for stuff.  I talked to people.  Like, seriously, I voluntarily spoke with strangers.  And, some of those strangers have become my friends.  While I have not cheered in the crowd with poms for more than 2 seconds, I have worn bling.

Bling people.

I’m just saying.

And then some sad news.

Kate and Grandpa at Did That Just Happen Blog

My beloved Grandpa, who was so fond of having adventures with me, passed away Tuesday the 6th.  He went peacefully and I know in my heart he was ready and he is in a much better place, and Heaven was happy (and lucky!!) to receive him.  He served God, his Country and his Family with grace and humor and love and I am a better person for having had him in my life.

And that is my recap of the last couple of weeks!  #Unprocessed October is still happening, and I’m amazed at how well I am doing… I did discover that Diet Coke and Cheetos are still my go-to stress snacks, and yeah, there were a few days that that happened! But all in all, it’s been a good way to kick off the Last 100 Days of the Year!

Now to finish preparing for Homecoming – but what have y’all been up to?

I Said Hi to My Brother

So, I don’t know if this is weird or normal.  Actually there are several parts of this story that I don’t know if they are weird or normal, but we are to focus on my actions today!

Have I shared that Grandpa has moved in with mom and dad?

Kate and Grandpa at Did That Just Happen Blog

He and I like to go run errands, so my Instagram is frequently littered with pictures of us out and about! It’s fun and he doesn’t mind taking a selfie! It kinda cracks me up how as soon as I pull out my phone to take a picture he leans in and smiles 🙂

For those not aware, I work from home.  I have a great boss and it’s a wonderful company, very small and very high tech.  We all share information on our cloud, and when you call our toll free number and pick an extension, it is routed to our cell phones.  It’s taken me many years to work my way to this spot and every couple of days I remember to give thanks for the blessing!

My dad also works from home.  (His home, not mine.) So he is able to be here (there) for Grandpa, who due to a couple of health reasons can’t live on his own. Dad was called out of town for work this week.  So I get up early, come over to mom and dad’s armed with my laptop and phone and at 6:30 am mom and I trade off.  She goes to work and I set up at their dining room table.  Usually about 8 am Grandpa is ready to get up and so I’ll have breakfast made, he gets up, we eat, hang out, he watches TV in the living room while I work, it’s been pretty easy to get into a routine.

What trail do you follow when you lose a Grandpa? I follow the oxygen at Did That Just Happen Blog

The other day I posted on IG: Oxygen, the giver of life.  Also the trail I follow when I hang up from a work call and I’ve lost Grandpa.

Today I had breakfast ready to go and heard him stirring.  I went in, helped him get untangled and he said he wanted to rest a bit more.  An hour later, I checked again – he still wasn’t quite ready to get up… Okay, a bit concerned but not worried.

Finally at 10:30, he was ready to get up; however, he didn’t feel well.  Wanted some Pepto.  He even pushed away his breakfast plate! So, off I went.

I wasn’t sure mom and dad had any of that pink liquid, but I went through the medicine drawer.  Then I went through the medicine cabinet upstairs.  Then I broke down and called mom to see if I had missed looking somewhere while I searched for some peppermint tea as a back up.

Mom goes “Upstairs in the wardrobe where we keep the Little’s clothes, there is some medicine left over from Lee, he might have had some.”

I found the medicine, but no pretty pink liquid.

And then I looked up, patted a box and said “Hi Lee!” and walked out.

Is that weird? It didn’t hit me what I did until I was walking away and then I was like, huh.  Yeah, that just happened.

Most of the time when I’m in that area, it never occurs to me that Lee, technically, is right there… and I can’t say I’ve ever said hi to him… so either my life is evolving – or things got weird 🙂 Let me know.  But if the answer is weird, I’m already prepared to blame a lack of sleep!

That moment when you talk to yourself and you start smiling like an idiot because you are just so hilarious

Aliens, Pudding and Pink Socks

I’ve so much to share that I don’t know where to start!

Tell the story you want to live

I want to blog about a phrase I used in my post about Mr. T’s pedicure: “The person I want to be”.  My friend Erica and I were on the phone and supposed to be working but got side tracked on the internet and a really cool discount shopping site… and as we kept Skyping links to products back and forth to each other, at one point we both said “I know it’s not me, but it’s who I want to be”.  And, you know what? We both bought pieces that represent the transition we want to make as people! I love that I have people in my life that understand me when I say weird things like “it represents who I WANT to be”

I’ll find time to share that once my new piece comes in and you can see what I felt was a physical manifestation of the person I want to be!

Oh my gosh! I swear I saw a UFO the other night!

UFO 1 UFO 2 UFO 3 UFO 4 UFO 5

What do you think? It was really low to the ground and there isn’t an airport anywhere by where I was!  And, there should be red and green lights on it if it’s a plane… and those are clearly not red or green!

Aliens.

Crawfish boil 01a56e20f3be677ff4167fa6c07c29784a86004ed5

Speaking of aliens… Yesterday I was a work “meeting”.  Annual crawfish boil put on by one of the local rep groups.

While I was eating my custom made vegetarian pizza my son was several towns away with the school theatre troupe doing a UIL clinic… and he sent me this picture:

Mr. T sprained ankle

I thought he tucked his pants into his pink socks and was being silly… and so I responded that he had too much time on his hands.

Why are you laughing, I sprained my ankle, it hurts bad

Of course he did! I’m two hours away from where he is.

And it’s in moments like that when I begin to wonder why I don’t have a head full of grey hair.  I mean, seriously, he couldn’t hurt himself when he’s at school and I’m down the street, no, it has to happen when we both happen to be out of town!

No, he didn’t need me to come pick him up.  He happened to have an ankle brace with him (which tells you so much about our lives!), and he used that while the troupe stopped for lunch, then he went and saw the trainer when he got back to school and they confirmed sprain and not a break, and released him with limited restrictions.  He then when to Cheer practice and then onto Work.  I eventually got to see him late that night!

He’ll survive.

Oh! And I have had such issues with pudding lately!! I can’t wait to tell you about the “healthy” cupcakes I made the other day…

homemade cupcakes

Okay, so I needed instant pudding for the icing.  And wouldn’t you know it, I didn’t buy instant!  I made them anyway, and we ate them, but there is a whole story behind it!

And then it gets worse! I bought ingredients to make a special St. Patrick’s Day trifle treat and it involved pudding, too – that I was supposed to dye green! And, after the cup cake “incident”, I was so very careful to find the Instant pudding… and I came home with Instant pudding… but in LEMON flavor!!!

AGH!!!

I can’t win!

We still ate the trifle anyway.  🙂

I hope all is well in you world!  Make it a great day!

PS, tell me I’m not the only one that’s seen a UFO or has issues buying the right pudding!! Please! I’m feeling insecure about my life choices right now!

🙂

I’m Falling Apart!

I’m not sure what I did, but when I woke up this morning my calf felt a bit “off”, but I suited up and went running anyway! Since I’m finally making progress on the Couch to 5k, I wasn’t about to let a bad nights sleep that resulted in my calf feeling a bit “off” hinder my progress!

I got home, showered and went to work. A few hours later, my calf really hurt. A little bit after that I couldn’t stand it – I had too much to do to not be able to walk. Read that sentence as “I had too much shopping to do”

enough clothes and shoes

Digging through my medicine cabinet I found 1 last heat pack. It was meant for your back or hip, but darned if it didn’t wrap nicely around my calf!

I am sure I looked quite ghetto doing all of my shopping with a massive white wrap around my leg and a slight limp!

I did it anyway!

 

Well, I did take it off for the Target run – it was coming loose and I wasn’t patient enough to re-wrap it!

I felt the affects – and put it back on to drive back home.

OH – but, guess what I saw in the stores! Yes, I know that they are starting Back-to-school early, but you’ll never believe this:

Christmas display

Christmas!!  Christmas in JULY!!!

Anyway, eventually my shopping was done and I was headed home; however, on the way home I saw a mobile blood drive. And, well, it was time for me to donate again. And it’s the right thing to do. I save three lives each time I donate! And, well, July donations got a coupon for a free pint of ice cream.

I would have donated anyway.  Most likely.  🙂

Carter mobile blood drive

So, I flipped a youie once traffic was clear and headed in. Low and behold, there was no wait! I was meant to be there!

I did all of the qualifications and took my test and got settled in the chair.

About 10 minutes later they were wrapping a bandage around my arm and moving me to a chair on the other side of the van. They could not get into my vein. They got all around it – and they knicked something because I already have a massive bruise forming – but they couldn’t stick me.

Fortunately, it only took about 4 minutes for them to figure it out on the other side and 5 minutes later they were wrapping me up and I was getting my cookies and juice.

Let’s recap:
Big white wrap on my calf.
Big blue bandage on my right arm.
Big blue bandage on my left arm.
Scabs healing on my knuckles (trampoline park was still worth it!)

Yeah… I turned 40 and it looks like I’ve fallen apart!

A Year Later

It has been over a year since I last talked to my brother and today marks the one year anniversary of his passing.  At times it is still surreal.  Just the other day Mr. T asked if I had seen the trailer for the new Teenage Mutant Ninja Turtle movie, and I said no, and he goes “It’s totally different.  I hate that Uncle Lee won’t be able to go see the movie with us.”  Uncle Lee did love TMNT growing up, and we’ve all seen the earlier movies a hundred times because he loved them – and yes, I hate that he won’t be here to go see the movie with us, too.

TMNT New

New look of TMNT

TMNT What have they done

TMNT Old School wondering “what have they done to us?”

 

Many of you were with me as I went through this journey, and you met Lee and learned about CRRT and how a mechanical heart works! While it really feels like it took a long time, it was 9 months from start to finish and one month from the time he started having real issues until his passing.

Several months ago I went through my Facebook feed and made a copy of all of my updates on Lee, I wanted to make sure I always had them, and today I am sharing them with you.

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April 6, 2013

Keep Lee in your thoughts and prayers. The meds he was put on to help his diabetes have made him sick, he’s switching to a new med, but still has to suffer thru the weekend while the old ones work out if his system. Please and thanks!

 

April 8, 2013

Lee is being admitted to the ICU for observation and monitoring. Please keep him in your thoughts and prayers. His blood pressure is very low and there are some other issues. Thanks!

 

April 9, 2013

I’m sitting on one side of Lee’s bed and mom is on the other. I’m checking emails and watching TV and for the last couple of minutes I just keep hearing mom giggle. Silence and then a giggle. Silence and then giggle, giggle. Not sure what she’s doing, but apparently that side of the bed is funnier!

 

April 9, 2013

(Mom’s post) I am asking everyone to put our son Lee in their prayers tonight. He is in ICU and is scheduled for surgery tomorrow. There is real concern about how his heart is going to handle the surgery. Please keep him in your prayers. He is being a trouper but his heart just isn’t helping him

 

April 10, 2013

Lee is out of surgery. He did good! He gets to go straight back to his room in the ICU and do his recovery there. Thanks to everyone for the prayers and the reaching out. Please continue to pray for his recovery.

 

April 11, 2013

Lee had a rough morning and his kidneys didn’t kick start like we wanted. So he had a port installed this afternoon so that dialysis could be administered. This will be a continuous bedside treatment to slowly clean his blood and remove the toxins. This should make it easier for his body to then work on its own. Thanks for the prayers and support. Let me know if you have any questions! And he had really appreciated the well wishes that have come his way!

Last picture of Lee and I together.

April 12, 2013

Lee is much more lucid today, which helps me out, I can tell what he’s saying, lol. The dialysis is working and his kidneys look good. His liver doesn’t look so good, tho, so we are calling in a new doctor for help. As always, thanks for the prayers and support!

 

April 12, 2013

We were told that Lee’s recovery would be up and down, and despite the setbacks, we do seem to be moving forward. Lee met some new doctors today. We’ve seen the GI doc, who is running some tests and had an ultrasound done on the liver, and we’ve seen the infectious disease doc who will just watch for a few days. Hopefully we can find out if something is wrong with his liver (it’s still congested) or if the issue is heart related. He slept a good portion of the day today, so I think his body is busy healing itself!

 

April 13, 2013

Small setback today, Lee has a fever, which is next to impossible when on dialysis, so they are working to find and kill the infection. They have also played, in essence, musical IV’s and removed the art and central lines and put in a picc line. He was surprised to learn today was Saturday, apparently he lost a few days during all of this!

 

April 14, 2013

Lee’s numbers look good today and his fever broke. Those are both big checks in the win column. We are very blessed that he has such a great group of doctors and nurses looking after him.

 

April 15, 2013

To my untrained eye, Lee seems better. His color has improved and his diet has been upgraded to full liquid so he gets things like cream soups and malt-o-meal. Of course, his numbers are still all over the place, not as stable as we want, but, he is moving forward. It is slow progress, but progress nevertheless. Please continue to send your prayers for Lee, and for his doctors and nurses and us! It’s been a full week in the ICU and there isn’t an end in sight just yet.

 

April 16, 2013

Lee had a rough day, but he was weaned off of one specific med, and this allowed us to stop dialysis. Tomorrow we should have new lab numbers to review, and the CRRT (dialysis) machine won’t be far away, but we are really hoping that his body is taking over and he won’t need more than a few hours a day, if at all. He is so ready to get better and be out of the hospital!

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April 17, 2013

Day 10 in the ICU and we are still showing progress, but it’s hard. Lee is struggling with pain and aches and today he went down for a traditional hemodialysis treatment. Please just keep him in your prayers.

 

April 18, 2013

Today Lee had a CT done for pictures of his internal organs and tomorrow he will have a Swan-Ganz right heart catheterization. (They will inset a small tube into the right side of the heart and arteries leading to the lungs to measure function and blood flow.) This will help get a full picture of what is going on inside his body and his doctors work on his treatment. Prayers please!

 

April 19, 2013

Lee is being transported to one if the UNTSW hospitals, not sure which, probably St. Paul. This will provide more specialize care. Sadly, I don’t think he’s well enough to really appreciate the helicopter ride, but the Care Flight staff will take good care of him.

 

April 22, 2013

Lee’s kidneys are doing better today, that’s a blessing and tomorrow they are going to attempt the right heart cath again. Hopefully they can do it this time. Everyone is ready to know the results of that!

 

April 23, 2013

I’m taking Mr. T to Diva Dinner tonight. Against his will. Good times ahead! On another note, on paper Lee is doing better, his kidneys and liver are responding. Sadly, he’s had a rough night and an even rougher day, he’s just out of sorts and very uncomfortable. He does have a small infection that they are fighting, but otherwise, looking good. On an even better note, more depts. have signed off on his transplant, so we might be able to get his case in front of the board for review and approval this week! The LVAD is also in serious discussion.  Prayers!!

 

April 24, 2013

Lee ended up being sedated and put on a ventilator yesterday evening and then had a contrast CT done. Found nothing on the CT that required surgery & he made it through the night! Prayers do work! He has developed a higher fever, so he is currently packed in ice and they are keeping him sedated while he is on the ventilator. Please keep sending prayers for him, his doctors and staff and family. Let me know if you have any questions! Thanks!

 

April 24, 2013

Lee’s fever broke! Yay! The ice blanket has been off for hours and he is running normal. The docs plan to do the right heart cath, no matter what, tomorrow (fingers crossed!).

LeeRemembered016

April 25, 2013

On another note, Lee’s fever came back, but has stabilized. The docs have decided not to do the right heart cath and just proceed forward with the surgery for the LVAD. Lee’s condition is hour by hour, but if he stays stable, they will do this tomorrow. Blessing!!! Also, today, his file is going before the transplant selection committee at St. Pauls. Please pray that he gets approved for his heart transplant!

 

April 25, 2013

Please pray for Lee’s surgery. Tomorrow he will have the LVAD installed on his heart. This is a very high risk operation but there is a surgeon willing to take it on and we are hopeful. He’ll have a rough couple of days afterwards, but this should help him while we wait on transplant options.

 

April 26, 2013

Please keep praying for Lee. We just got a report that the surgery is going well. He is still open on the table, but the device is installed. They are doing dialysis to cleanse his blood of the toxins and meds. Should only be a few more hours. Thanks!

 

April 26, 2013

Please keep up the prayers. The right side of his heart didn’t hold up when they put the device on the left side so they have had to go ahead and put an assistance device on the right side, too. They are still running dialysis to help clear his blood, and it should be a few more hours. Thanks guys!

 

April 26, 2013

Surgery is over. They will be watching him for bleeding and stabilizing vitals. They may go back in as early as Sunday and try to take off the right side assist device. He survived the surgery! Another victory!

 

April 27, 2013

Please be praying for Lee who is back in surgery this morning due to his assistance devices. Thanks

 

April 27, 2013

Lee just got out of surgery. Had to replace the LVAD unit. Took off the RVAD but added an Ecmo to oxygenate his lungs. They are filling up. The Ecmo will basically bypass his lungs to give them time to heal. I haven’t researched that item yet! Please keep praying!

 

April 27, 2013

Well, Lee no sooner got done with surgery earlier and they took him right back in. The oxygeninator (I made that word up) that was working his lungs wasn’t balanced with his LVAD. Considering they haven’t ever done this combination of equipment before, they are paying real close attention and pulling out all the stops. Please keep him in your prayers.

 

April 28, 2013

Lee was bleeding a lot last night, so they had to open his chest again to pack it and try to stop the bleeding. They will leave it open so they can go in and repack as needed. Please say a little prayer as you read this!

 

April 28, 2013

Sunday was a day of rest for Lee and he had a pretty peaceful day. His chest is still open and packed and probably will be while he is on the Ecmo, but that has allowed his lungs to begin to heal! Thanks to everyone for their prayers!

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April 30, 2013

This morning Lee is back in the OR and they are removing all of the packing, cleaning out his chest and doing an antibiotic “Paint” job inside before they finally sew his chest up. It’s been open for a couple of days now, so this is really good news that they can close him up! The LVAD is working well and they are keeping him on the ECMO a bit longer. Please pray for a successful closure this morning. Thanks!

 

April 30, 2013

Lee made it out of surgery this morning, but he’s been rushed back to the OR due to bleeding. Please continue to keep him in your prayers!

 

April 30, 2013

Lee had a busy day. Had surgery to close his chest, was rushed back in when he “sprung a leak”. It appears that closing the chest put more pressure on the organs and machines than expected, as once they opened him back up, everything was normal. So, now his chest is open (a bit more than before) and he is packed up again. They went ahead and installed a defibrillator on his right side, just in case, but as of now, only his left side is getting assistance. Also, prayers have been answered because he is off the Ecmo and back on the ventilator. Please keep the prayers coming! It is still a very touch and go situation.

 

May 1, 2013

In the wee hours of the morning Lee was back in the OR having the ECMO put back on, the right side if his heart just wasn’t keeping up. It was a success and he is back in his room, chest open and packed up. The doctor is thinking of waking him up later today. Please keep praying for him and that his heart will hold on.

 

May 1, 2013

The doctors have taken Lee off all of the anesthesia and we are waiting for him to wake up. He needs to wake up and be able to follow some basic commands and then the doctors can go before the transplant selection committee tomorrow with a good report. Please keep in mind his chest is still open and packed and he is back on the Ecmo, and he has just been through so very much. Today’s prayer is for him to wake up! Thanks!

 

May 2, 2013

Please keep Lee in your prayers as we are still waiting for him to wake up properly. They are calling in a neuro consult and will possibly do bedside CT tomorrow. Let me know if you have any questions and thanks!

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May 3, 2013

Today’s prayer is for Lee’s liver to function properly. They think the liver is causing some of his sedation issues. So, we’d love for his liver to start working better so we can see if he will wake up properly. Today he will have another procedure and they will remove the packing in his chest, give him an antibiotic paint job and then repack his chest. We appreciate all of the prayers.

 

May 4, 2013

Just got done seeing Lee. We still need lots of prayers for his liver! He is also back on CRRT, but that’s okay, his kidneys will bounce back. Come on liver! Work! Please and thanks!

 

May 5, 2013

Please keep praying for Lee’s liver! I talked to the nurses and they said we can post Get Well cards for Lee in his room. If you need an address please message or text me. I think he would enjoy hearing us read them to him!

 

May 6, 2013

This morning Lee has some GI bleeding issues that they are working on, and he is going to have a CT scan done soon. Please pray for the healing of his body. Let me know if you have any questions, and I’ll update you when I have more info! Just keep sending up the prayers!

 

May 7, 2013

Thank you all for your love, support and prayers. Today we released Lee from life support and he had a very peaceful transition to Heaven. My family and I are so grateful to all of you who have said prayers, thank you very much from all of us from the bottom of our hearts.

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25 Songs in 25 Days – Day 7

25 Songs in 25 Days – Day 7 – A Song That Reminds You of the Past Summer

My past summer was rough.  Beyond rough.  Blessings by Laura Story was one of the songs that we played at Lee’s funeral, and while it is a beautiful song, unlike almost all of the other songs I’ve picked, I couldn’t listen all the way through!

To those that were with me last summer, thank you so much from the bottom of my heart for all of the support and love you showed.

For those who weren’t with me, here is a link to my favorite post, and a good summation of my life last year.

Then he Kissed the Back of my Hand. 

And check out these awesome people that are playing along with me:

Melanie Jo Moore

Surviving the Mad House

Life in the Wylde West

Bishop Eddie Tatro’s Study

Four Calders