Okay, so we all hear what we want to hear, and sometimes what we hear isn’t what was said. And sometimes, we just flat out don’t hear it correctly.
Dad and I both heard the same thing, at different times, so that at least makes me feel better that I’m not operating in the “hear what you want to hear space”. We both understood the information to mean one thing, and the reality is apparently totally different…
I was under the impression that a good portion of the tests and labs being run were to help get Lee better and a side result was that this would help get him on the transplant list.
Boy, I could not have been more wrong.
Mom took the early morning shift yesterday in order to catch all of the doctors. I had volunteered so that she could get some sleep, but she wanted to be the one there when the docs came in and I totally respect that, I would too if it was my kid in there! I came in and it didn’t look like good news, but operating on the cloud of information I had, I wasn’t prepared, none of us were, actually.
As of right now, everything that is being done is not to help get him on the transplant list, but to just help him survive. To try and keep him alive.
His liver enzymes are looking better, meaning they haven’t gotten worse. His kidneys are doing worse, the numbers are a bit better but that is due to dialysis, not because they are functioning in their own. He is running a fever so he does have an infection somewhere in his body. They have him on antibiotics and will take cultures to see if they can identify who, what, when and where. Okay, they don’t have to identify all of that, it just sounded good!
I know that most of this information you don’t need, but in addition to using this blog as a cathartic release, this is a good spot to document and record Lee’s journey. I do have to laugh sometimes, because I will anguish over my Facebook status update, making sure I only put specific information out and try and keep it as positive as possible. I need to keep family and friends updated and honestly, FB is just much easier than trying to email and text and call everyone, but not everyone needs to know the nitty-gritty information. So, aren’t you guys the lucky ones?!?! 🙂